Outside my window...
As
Pooh Bear would say,its a blustery day. The rain is pouring, the leaves are
falling, the wind is blowing and I love it. The extra warm incredible summer we
had was a nice treat but I am a Washington girl through and through and I love
me some fall.
I am thankful for..
A prednisone support group I found online. As big and incredible and loving my friends and family cheering team is, it is incredible to have found a group of people dealing with EXACTLY the same side effects and EXACTLY the same level of frustration with amounts of doctors appointments and EXACTLY the same difficulty attempting to taper off this ridiculous drug. I have found myself laughing, crying, learning and offering experience to this giant network of people.
I am thinking about...
Continuing to build relationships with my daughters. As they grow and change into new phases and interests and hobbies and activities, I think it's crucial that I grow and change with them. It's not always easy and takes a lot of work but I want a close relationship in which they feel like they can come to me with anything big or small and someday grow into friendships that last a lifetime. For the time being, I need to continue to evolve my parenting style that molds and shapes them into healthy, happy, polite, young ladies that are pleasant to be around. And I need to remember to take time out from parenting just to play with them - Haley and I had a pretty rousing game of Disney Princess Monopoly last night and it was truly a joy to listen to her chat about her day and giggle as she kicked my booty!
Learning all the time...
I am thankful for..
A prednisone support group I found online. As big and incredible and loving my friends and family cheering team is, it is incredible to have found a group of people dealing with EXACTLY the same side effects and EXACTLY the same level of frustration with amounts of doctors appointments and EXACTLY the same difficulty attempting to taper off this ridiculous drug. I have found myself laughing, crying, learning and offering experience to this giant network of people.
I am thinking about...
Continuing to build relationships with my daughters. As they grow and change into new phases and interests and hobbies and activities, I think it's crucial that I grow and change with them. It's not always easy and takes a lot of work but I want a close relationship in which they feel like they can come to me with anything big or small and someday grow into friendships that last a lifetime. For the time being, I need to continue to evolve my parenting style that molds and shapes them into healthy, happy, polite, young ladies that are pleasant to be around. And I need to remember to take time out from parenting just to play with them - Haley and I had a pretty rousing game of Disney Princess Monopoly last night and it was truly a joy to listen to her chat about her day and giggle as she kicked my booty!
Learning all the time...
What's
important. I'm being reminded from every which direction that I have no control
over lots of things I wish I could control. I do have control, however, of how
much I allow those things to control me. I am learning to choose to focus and
put my attention on those things that are important . . . relationships with my
husband, my kids, my family, my friends . . . and that those things don't look
the same as they used to. I can't go to Zumba any more . . . I can't work any
more . . . I can't walk my kids to school any more . . . but I can wallow and
focus on that all day (and trust me I have!) or I can choose to focus on the
fact that I am home and not in the hospital and I have two healthy kids that I
can play games with and read books with and watch movies with and a husband
that has stood by my side in greater support than I could have ever imagined 13
years ago when we said I do and I have a group of friends that will come during
the day carrying Thai food for an "in house" lunch date when I'm
going a bit stir crazy but it's to tough to go out that day and a sister that
sends me the cutest pictures in the universe of my nephew that make me smile
and remind me whats important . . . those people that are there healthy or sick
. . . and could care less if I was going to Zumba or walking to school or going
to work . . . now I need to give myself that same grace and enjoy this crazy
life.
From the kitchen...
From the kitchen...
Butternut
squash soup in the crock-pot. It's a family favorite and officially means fall
has arrived!
I am creating . . .
Piles of folded laundry for my family to carry upstairs and put away. Call me crazy but I love doing laundry. There is something about taking a giant heap of dirty unorganized clothes and in a few hours turning them into lovely stacks of fresh smelling goodness. OCD much anyone?
I am working on...
Inputting Travis grades for him. He is an amazing teacher and does a ton of work. If I can lighten the load a little by mindlessly putting numbers into boxes, I'm happy to.
I am going...
To
pick up my middle schooler and her friend after school. Wednesday night is
youth group night. Yes - I have a child old enough for youth group now?! I love
picking them up after school because the stories of the day start pouring out
immediately. A few things you must know about communicating with a middle
schooler in case you don't have one yet . . . they talk really loud, they talk
really fast, and don't try to ask a question or make a comment or you'll totally
throw them off track requiring a complete retelling of an already very long and
drawn out story with way to many details. Just listen. You'll be amazed what
you'll learn!
I am hoping...
I am hoping...
For
new ideas from a pulmonary specialist. Next week I am headed down to Seattle to
see a new doctor that specializes in a three part surgery/procedure that has
shown a lot of success in severe asthmatics. Although I have to be at a very
low dosage of prednisone to qualify, we're hopeful that maybe with her experience
with patients as tricky as me, she'll have some new insight for us. It can't
hurt to try.
I am reading...
Lots and lots and lots. I seem to go in phases. I'm always reading something but there are times when I speed up and read through stacks of books. It must be the weather. Big blanket on my lap, cozy rocking chair with a view out the window of the changing leaves, a warm cup of coffee with Pumpkin Spice creamer, a book . . . bliss.
I am reading...
Lots and lots and lots. I seem to go in phases. I'm always reading something but there are times when I speed up and read through stacks of books. It must be the weather. Big blanket on my lap, cozy rocking chair with a view out the window of the changing leaves, a warm cup of coffee with Pumpkin Spice creamer, a book . . . bliss.
I am hearing...
The nebulizer. Yup. I said it. And it stinks. I picked up a respiratory infection that we tried to treat with three rounds of antibiotics but unfortunately it continued to pick up speed and dropped further in my lungs requiring an increase in prednisone again. It was one of the most discouraging, frustrating weeks I've had in a very long time. I worked 22 long hard weeks to taper myself down to 30mg . . . the lowest I've been in 9 months . . . only to be told I have to go back to 60 starting all over again from the beginning. If all goes exactly as hoped, I'm looking at 24 weeks to go to get back down to 30 again ultimately hoping to get to zero. This is one exhausting journey I don't understand. I'm thankful for this drug that allow me to breathe . . . but man I hate it!!!
Around the house...
Fall
decorations. Although we don't have as many as we do for Christmas, we have
some cute pumpkins and corn stalks and crafts the girls have made through the
years that just make our home that much cozier.
One of my favorite things...
Holiday
flavored creamers. I love the Pumpkin Spice and I love the Peppermint Mocha and
I think it's for the celebration of the holiday as much as the yummy
flavor.
Here are some picture thoughts I am sharing with you...
Here are some picture thoughts I am sharing with you...
We had some visitors in our backyard . . . a mommy and a baby racoon were walking around on the girls play set, the back of our fence and the neighbors roof. Haley wanted to get close but we reminded her of the part in "Elf" when he tried to give the racoon a hug . . . enough said.
This weekend Travis, the kids, and
our incredible cousin Mandi went to the pumpkin patch and picked out the yearly
pumpkins. They came home and we all carved out our masterpieces. Haley went
with Doc McStuffins, Hannah cut out Yoda, Mandi somehow captured Ilsa in
perfect likeness, I gave a sarcastic nod to my dear friend Asthma and Travis
managed to create a pumpkin eating a pumpkin. We had a ton of fun and our porch
looks awesome!!
Here's wishing you an afternoon of a
warm blanket, a cozy chair, a steaming cup of coffee, and book. Happy Fall
Y'all.
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